The weekend started with a trip to get groceries and do a few errands that I did on the way to see my mom while I was out and about. Stopped in to check on her and took care of a few things that needed taken care of while I was there with her. She was a little beside herself that she mentioned herself. I said I am sorry you are feeling this way and she said it will be ok plus seeing you makes me feel better. Be still my heart. I spent a little more time and then off I went to run some more errands on the way home from seeing mom. As I am writing about my weekend I look back on events and it is like looking thru the other side of the mirror. Through out this weekend I had continued thoughts of what I should or need to do and what else I should add to my list of things that seems to keep growing as I learn more and more about taking care of someone with dementia. All along with those thoughts I was still a mom, wife and still taking care of what I needed to take care over the weekend. Life still goes on even tho it seems to stop for a little when your looking thru the lens of dementia.
On another note still looking into home care and I tell you there is a lot of information out there and it can get confusing. I have sites booked marked and copied and say to myself when I get time I will really read the information. Which I am hoping I will, but who knows. Hubby comes home and tells me he has a family friend who just went thru this and is going to meet with him to see if he can lead us in the right direction. There should be a plan somewhere to help those going through this I know we are not the only ones. It would be nice to be able to do a search and find what you need without going thru so many hoops. This is the frustrating part when you are trying to gather information about really anything. Sorry just a little venting.
One other thought I came across an article or something I read about medical ID bracelets. The more I think about this it is a great idea. Has anyone already done this or has any additional information I would love to hear about. Thank you. Blessings for a great day!
Today started just like the rest get the boys up for school, breakfast and then log in to school. For me was then left to take care of paying the bills, returning emails, checking to make sure the boys schedules where updated with the constant changes that happen. It felt normal a routine that felt like it hasn’t happened in a long time. So the phone rings I am off to help take care of a issue at church no biggie just another normal feeling thing. Back home lunch and say I should start to get back to looking into getting information on home care and some other additional information I find I need to look into while searching up home care. I come across a few good articles and webpages so I bookmark them for later, make PDFs so I have the information later for when I have more time to really read the information closer. At the same time I am working on gathering information my youngest is practicing his instrument and then continues to ask questions. Just normal things. I found a great article and I will share it with you when I get it off my other computer. I found it fascinating. I also called mom just to see how she was doing she seemed in great spirits and I could hear the smile in her voice since I also told her that I would be seeing her tomorrow. I notice things like this more the little things seem so much BIGGER now. I love that. Speaking of good feelings I would like to share a great memory that happened only few weeks ago.
We participated in the Longest Day it was to be a great event and then it seemed that the world stopped for awhile. So things where put on hold. But we where still able to raise some funds and have fun in the process. I asked my mom what would she like to have as her fundraiser and she mentioned something that others could use so we came up with ceramics. Found a wonderful business called Busy Bees Pottery and Art Studio close to where I live and they created kits with everything that you would need to create your creations and then all would need to happen is to get them fired. Which you dropped them off and then picked them up when done it was great! So we picked a day me and my youngest son went to see my mom and we had a painting party on her porch. We had a little lunch then painted away. She loved it and so did we. She just kept saying this was a great day and also mentioned that she will remember this day forever and I then thought to myself I hope she does!
Today was the start of a new day. Wake up, breakfast for the boy and start school via online. This is how we are rolling for now. So while the boys are at school I worked on some things I needed to take care of around the house. Then I remembered that I needed to take care of getting a replacement car tag for her. Found the site and form to fill out which wasn’t a big deal. Took care of the form, but I needed information that I didn’t have so a call off to mom. Call her up to see how she is doing and she sounds in good spirits. I mentioned I had a question for her and she then said, “hopefully I can answer it” I said, “it’s an easy one” and proceed to get the needed information from her. This seems like a simple question as do most questions, but to someone with dementia it’s not and it changes from day to day. One day it seems normal (normal is in the eye of the beholder) as it can be and the next day not so normal. Sometimes a thought might go thru your head is who will I get today and how am I going to have to handle this moment. With dementia it and be a moment by moment, hour by hour or minute by minute. This is what I have been noticing since dementia and Alzheimer’s has come into my life. I am so Blessed how God has placed this adventure into my path. I look at this as an adventure if I didn’t I could go nuts. I love my mom and I will take her anyway God gives her to me. Thought for today… Go with the flow with what comes your way!
Hello there to you all I hope this finds you all well today. As I was sitting and or going thru my day I thought of all the things I should be doing in getting things setup for my mom since I was able to get approval to act on her behalf. I should see about healthcare, home services, etc… But then I was called on from one of my boys saying they needed help for school and back to what is happening now. As I sit here typing about happenings today I start to thinking about what I should be doing and how is my mom doing right now. Then I remind myself God is in control and it helps to remember this when the guilt starts to flow in. Hoping that tomorrow to get into the nitty-gritty of home care. Health insurance is a fun thing to maneuver when you have all your senses I can’t imagine when you don’t. Do you have any suggestions in the best way to get help for finding home care?
Today is Labor day and myself and my family are spending the day together at home today. We are getting ready for tomorrow when my boys start school at home since our school district is not doing in person schooling yet. I had spent the last few days setting up my blog and today is the first day that I am posting my first post. Yay me!!!
At the same time I am thinking about what I should write about I am thinking of my mother is she ok, does she need anything, etc… You see she is almost an hour away from me with traffic and it not an easy thing to just to drop everything and just go and check on her. Then I have guilt that I am not close enough or check on her every day. You know the feeling when you are taking care of someone or even your family you have that guilt that you are not doing enough. So I have an internal battle with myself throughout the day as to what I should do. I do see my mom I try to a couple times a week if I can and call her on the phone as well. I am lucky too my mom has a great friend who she has been friends with for a very long time and she is also a helper for me too. So I am not totally alone in taking care of my mom. I have things that I need to start doing for my mom now to like looking into home care for her along with house care. She can still care for herself to a point and if you talk to her she would say she is fine. She is a very proud woman so she is and that can be good at times, but not now. She needs help and is willing to go along with what we are telling her. One thing I have learned too in having been a caregiver for the lady at my church is your try to keep them involved in the decision making for as long as you can it helps to make it go a little easier. There is emotions everywhere I will tell you with having to point out to your mother that she needs help. When you have that realization that you are now the parent to your parent it really is an eye opener. She will always be my mom and I am sure this partnership with dementia play out as long as God sees fit.
This coming week I plan on posting my dealings with insurance, home care options and family. I am glad that you could join me on my journey thru the lens of dementia. Blessings for you all!
I am glad you could join me today. I am a daughter of a mother who was just recently diagnosed with Dementia. This is going to be my story in how we navigate this journey together.
Why do I want to share this?
I feel this isn’t something that is spoken about much at all.
My hope is that what I share will be able to help someone to let them know they are not alone.
Let me give you a little background on me. I am a mother of two great boys well you know how boys can be, but they are still my boys. I am married to a wonderful guy for 25+ years. As you know we have our ups and downs too. Our boys are busy with school, music and other activities which you know that mean I am busy too. I am a lunch lady as well while the boys do their school things and help within our community as well. We belong to a great congregation where we live and we love our church family. Speaking of our church family that will lead me into my next bite of information about how and why I am doing this blog.
About two years ago I was asked if I would be willing to sit a wonderful young lady who also was diagnosed with alzheimer and or dementia. I said sure and so beings my journey about learning in how to deal with dementia. That seems not the right word “deal”, but for now let’s go with it shall we. So my job would be to go to her house and to see if she needed anything like meals, taking her meds, to go to a store or anything else she could think of or need. She is a wonderful lady, but as I was with her I could tell that she was changing. She remembered things from when she was a kid, being married, but couldn’t remember if she ate or left a pot on the stove. That is the realization of alzheimer and dementia. The good that came out of me sitting with this lovely lady is that I was able to see what was happening and could use it in my life right now. God has His perfect timing and that now brings us up to my mom and OUR journey with dementia.
Me and my mom where to start? I guess the beginning is a good place. Growing up my parents decided it was best to get a divorce. I would visit my mom and see her during holiday’s and such. It was how we rolled. As I got older she was still involve in my life. Now married with children she is still involved. She loves her grand kids and would do anything for them and or for myself as well. She loves her family and I can still see this when I see her.
Onto where we are now. My mom was given the diagnoses of having dementia over a year ago while I was sitting with the lady of our church still. See I said, “God has His timing.” Since then we have had our ups and downs with how dementia has affected our lives.
That is where I will leave you for now and you will find additional information on my blog. Blessings